The registry is governed by a Registry Steering Committee composed by the EURO-NMD Coordinator and Members of the EURO-NMD Registry Consortium. The Registry Steering Committee works closely with the EURO-NMD Executive Committee where each thematic working group of the network is represented.
| Role | Name | Partner |
| Coordinator | Teresinha Evangelista | APHP Hôpital Pitié Salpêtrière, Paris, France |
| Clinical Advisor | António Atalaia | APHP Hôpital Pitié Salpêtrière, Paris, France |
| Project Manager | Carla D’Angelo | APHP Hôpital Pitié Salpêtrière, Paris, France |
| Co-Coordinator | Janbernd Kirschner | Medical Center – University of Freiburg, Germany |
| Data Manager | Dagmar Wandrei | Medical Center – University of Freiburg, Germany |
| IT Helpdesk | Dagmar Wandrei | Medical Center – University of Freiburg, Germany |
| IT Lead | Adrian Tassoni | Medical Center – University of Freiburg, Germany |
| Interoperability and FAIRification Lead | Peter Bram t’Hoen | RadboudUMC, Netherlands |
| Interoperability and FAIRifcation, FAIR Data Steward | Nawel Lalout | RadboudUMC, Netherlands |