We are delighted to announce that the following organisations are involved with this project.
Partner | Short Name/Code | Country |
Assistance Publique Hopitaux de Paris | AP-HP | France |
Universitaetsklinikum Freiburg | UKLFR | Germany |
Stichting Katholieke Universiteit | RUMC | the Netherlands |
Stichting United Parent Projects Muscular Dystrophy | UPPMD | the Netherlands |
Stichting Duchenne Data Foundation | DDF | the Netherlands |
Association Institut de Myologie | AIM | France |
Association Francaise Contre les Myopathies | AFM | France |
![](https://registry.ern-euro-nmd.eu/site/wp-content/uploads/2021/02/AP-Hôpitaux_de_Paris-1024x230.png)
Assistance Publique Hopitaux de Paris (AP-HP)
Coordinator of the Euro-NMD Registry Hub project.
![](https://registry.ern-euro-nmd.eu/site/wp-content/uploads/2021/02/Universitaetsklinikum-Freiburg-1024x410.png)
Universitaetsklinikum Freiburg (UKLFR)
Design and development of the registry
![](https://registry.ern-euro-nmd.eu/site/wp-content/uploads/2021/02/Stichting-Katholieke-Universiteit-1.jpg)
Radboud Universiteit Nijmegen (RUMC)
FAIRification/interoperability
![](https://registry.ern-euro-nmd.eu/wp-content/uploads/2021/12/WDO_Logo-1024x433.png)
World Duchenne Organization (UPPMD)
Evaluation of the project’s output and impact
![](https://registry.ern-euro-nmd.eu/wp-content/uploads/2021/12/DDF-logo-1024x432.png)
Duchenne Data Foundation (DDF)
![](https://registry.ern-euro-nmd.eu/site/wp-content/uploads/2021/02/Association-Institut-de-Myologie.jpg)
Association Institut de Myologie (AIM)
![](https://registry.ern-euro-nmd.eu/site/wp-content/uploads/2021/02/Association-Francaise-Contre-Les-Myopathies-1.png)
AFM – Téléthon (AFM)