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EURO-NMD Registry Website

EURO-NMD Registry Website

European Reference Network for Neuromuscular Diseases - EURO-NMD - Registry Website

  • About this project
  • News
  • Our Partners
  • Project Workplan

Our partners

We are delighted to announce that the following organisations are involved with this project.

PartnerShort Name/CodeCountry
Assistance Publique Hopitaux de ParisAP-HPFrance
Universitaetsklinikum FreiburgUKLFRGermany
Stichting Katholieke UniversiteitRUMCthe Netherlands
Stichting United Parent Projects Muscular DystrophyUPPMDthe Netherlands
Stichting Duchenne Data FoundationDDFthe Netherlands
Association Institut de MyologieAIMFrance
Association Francaise Contre les MyopathiesAFMFrance

Assistance Publique Hopitaux de Paris (AP-HP)

Coordinator of the Euro-NMD Registry Hub project.

Universitaetsklinikum Freiburg (UKLFR)

Design and development of the registry

Radboud Universiteit Nijmegen (RUMC)

FAIRification/interoperability

World Duchenne Organization (UPPMD)

Evaluation of the project’s output and impact

Duchenne Data Foundation (DDF)

Association Institut de Myologie (AIM)

AFM – Téléthon (AFM)

Contact us

registry@ern-euro-nmd.eu

Euro-NMD tweetsFollow

ern euro_nmd
Tue 9 August 2022

💻 Upcoming #ernRND joint #webinar with ERN EURO-NMD and the European Academy of Neurology
📚 Vanishing white matter
📅 13. september, 3-4 pm CET
🗣️ Marjo van der Knaap, Amsterdam University Medical Center, the Netherlands
Sign up 👉 https://bit.ly/3Smfe1C
#neurology #pediatric

Reply on Twitter 1556831128585117696Retweet on Twitter 15568311285851176968Like on Twitter 155683112858511769619Twitter 1556831128585117696
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This project is funded by the 3rd EU Health Programme;
Grant Agreement: 947598
EURO-NMD Registry — HP-PJ-2019

Total EU funding: 200,000€
Total Patient Organizations in kind contribution : 274,641.20€
Total kind contribution : 368,500.63€
This project is co-funded by
the European Union