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EURO-NMD Registry Website

EURO-NMD Registry Website

European Reference Network for Neuromuscular Diseases - EURO-NMD - Registry Website

  • About this project
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  • Our Partners
  • Project Workplan

Our partners

We are delighted to announce that the following organisations are involved with this project.

PartnerShort Name/CodeCountry
Assistance Publique Hopitaux de ParisAP-HPFrance
Universitaetsklinikum FreiburgUKLFRGermany
Stichting Katholieke UniversiteitRUMCthe Netherlands
Stichting United Parent Projects Muscular DystrophyUPPMDthe Netherlands
Stichting Duchenne Data FoundationDDFthe Netherlands
Association Institut de MyologieAIMFrance
Association Francaise Contre les MyopathiesAFMFrance

Assistance Publique Hopitaux de Paris (AP-HP)

Coordinator of the Euro-NMD Registry Hub project.

Universitaetsklinikum Freiburg (UKLFR)

Design and development of the registry

Radboud Universiteit Nijmegen (RUMC)

FAIRification/interoperability

World Duchenne Organization (UPPMD)

Evaluation of the project’s output and impact

Duchenne Data Foundation (DDF)

Association Institut de Myologie (AIM)

AFM – Téléthon (AFM)

Contact us

registry@ern-euro-nmd.eu

Euro-NMD tweetsFollow

ern euro_nmd
Tue 2 March 2021

It's coming!
Next #euronmd webinar with @ERN_RND and @EANeurology

11 MAR 2021 at 16:00 CET

Telemedicine in NMD: state of the art

by Profs Sabrina Sacconi and Gabriele Siciliano

Please register: https://aim.zoom.us/webinar/register/WN_5LBXfwhxTVydKwnbjhc6Iw

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This project is funded by the 3rd EU Health Programme;
Grant Agreement: 947598
EURO-NMD Registry — HP-PJ-2019

Total EU funding: 200,000€
Total Patient Organizations in kind contribution : 274,641.20€
Total kind contribution : 368,500.63€
This project is co-funded by
the European Union