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EURO-NMD Registry Website

EURO-NMD Registry Website

European Reference Network for Neuromuscular Diseases - EURO-NMD - Registry Website

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  • Project Workplan

Project Workplan

Our project consists of the following areas of work as defined by the Grant Agreement for this project.

WP NumberWP TitleLead
WP1Coordination of the projectAP-HP
WP2Dissemination of the projectAP-HP
WP3Evaluation of the project’s output and impactUPPMD
WP4Design and development of the registryUKLFR
WP5Interoperability and FAIRificationRUMC
WP6Development of Quality and Outcome indicatorsAIM

Contact us

registry@ern-euro-nmd.eu

Euro-NMD tweetsFollow

ern euro_nmd
Tue 9 August 2022

💻 Upcoming #ernRND joint #webinar with ERN EURO-NMD and the European Academy of Neurology
📚 Vanishing white matter
📅 13. september, 3-4 pm CET
🗣️ Marjo van der Knaap, Amsterdam University Medical Center, the Netherlands
Sign up 👉 https://bit.ly/3Smfe1C
#neurology #pediatric

Reply on Twitter 1556831128585117696Retweet on Twitter 15568311285851176968Like on Twitter 155683112858511769618Twitter 1556831128585117696
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This project is funded by the 3rd EU Health Programme;
Grant Agreement: 947598
EURO-NMD Registry — HP-PJ-2019

Total EU funding: 200,000€
Total Patient Organizations in kind contribution : 274,641.20€
Total kind contribution : 368,500.63€
This project is co-funded by
the European Union