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EURO-NMD Registry Website

EURO-NMD Registry Website

European Reference Network for Neuromuscular Diseases - EURO-NMD - Registry Website

  • About this project
  • Our Partners
  • Project Workplan

Project Workplan

Our project consists of the following areas of work as defined by the Grant Agreement for this project.

WP NumberWP TitleLead
WP1Coordination of the projectAP-HP
WP2Dissemination of the projectAP-HP
WP3Evaluation of the project’s output and impactUPPMD
WP4Design and development of the registryUKLFR
WP5Interoperability and FAIRificationRUMC
WP6Development of Quality and Outcome indicatorsAIM

Contact us

registry@ern-euro-nmd.eu

Euro-NMD tweetsFollow

ern euro_nmd
Mon 18 January 2021

Fast approaching 21 January 2021 at 16:00 (CET)
Sleepiness, fatigue and apathy in DM1 patients
Benjamin Gallais from ÉCOBES - Recherche et transfert​, Cégep de Jonquière, CA

#euronmd @ERN_RND and @EANeurology
Please register in advance for this webinar:
https://aim.zoom.us/webinar/register/WN_v8UFNR5sTduMEbHZVGknXA

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This project is funded by the 3rd EU Health Programme;
Grant Agreement: 947598
EURO-NMD Registry — HP-PJ-2019

Total EU funding: 200,000€
Total Patient Organizations in kind contribution : 274,641.20€
Total kind contribution : 368,500.63€
This project is co-funded by
the European Union