We are delighted to announce that the following organisations are involved with this project.
| Partner | Short Name/Code | Country |
| Assistance Publique Hopitaux de Paris | AP-HP | France |
| Universitaetsklinikum Freiburg | UKLFR | Germany |
| Stichting Katholieke Universiteit | RUMC | the Netherlands |
| Stichting United Parent Projects Muscular Dystrophy | UPPMD | the Netherlands |
| Stichting Duchenne Data Foundation | DDF | the Netherlands |
| Association Institut de Myologie | AIM | France |
| Association Francaise Contre les Myopathies | AFM | France |
Assistance Publique Hopitaux de Paris (AP-HP)
Coordinator of the Euro-NMD Registry Hub project.
Universitaetsklinikum Freiburg (UKLFR)
Design and development of the registry
Radboud Universiteit Nijmegen (RUMC)
FAIRification/interoperability
World Duchenne Organization (UPPMD)
Evaluation of the project’s output and impact
Duchenne Data Foundation (DDF)
Association Institut de Myologie (AIM)
AFM – Téléthon (AFM)