The EURO-NMD Registry Hub aims to significantly contribute to the landscape of rare neuromuscular diseases in Europe. This article provides an
Independent Advisory Committee (IAC) established
An group of external stakeholders can act as a reliable sounding board providing valuable information regarding a wide array of expertise. At the same
Euro-NMD Registry Hub
Patient centered and interoperable registry hub for Rare Neuromuscular Diseases EURO-NMD, ERN for Rare Neuromuscular Diseases, spans 14 European