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EURO-NMD Registry Website

EURO-NMD Registry Website

European Reference Network for Neuromuscular Diseases - EURO-NMD - Registry Website

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Project update

9 February 2021

Independent Advisory Committee (IAC) established

An group of external stakeholders can act as a reliable sounding board providing valuable information regarding a wide array of expertise. At the same

Category iconIAC,  Project update

25 June 2020

Euro-NMD Registry Hub

Patient centered and interoperable registry hub for Rare Neuromuscular Diseases EURO-NMD, ERN for Rare Neuromuscular Diseases, spans 14 European

Category iconProject update

Contact us

registry@ern-euro-nmd.eu

Euro-NMD tweetsFollow

ern euro_nmd
Tue 2 March 2021

It's coming!
Next #euronmd webinar with @ERN_RND and @EANeurology

11 MAR 2021 at 16:00 CET

Telemedicine in NMD: state of the art

by Profs Sabrina Sacconi and Gabriele Siciliano

Please register: https://aim.zoom.us/webinar/register/WN_5LBXfwhxTVydKwnbjhc6Iw

Reply on Twitter 1366673073169170434Retweet on Twitter 13666730731691704343Like on Twitter 13666730731691704344Twitter 1366673073169170434
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This project is funded by the 3rd EU Health Programme;
Grant Agreement: 947598
EURO-NMD Registry — HP-PJ-2019

Total EU funding: 200,000€
Total Patient Organizations in kind contribution : 274,641.20€
Total kind contribution : 368,500.63€
This project is co-funded by
the European Union