• Skip to primary navigation
  • Skip to main content
EURO-NMD Registry Website

EURO-NMD Registry Website

European Reference Network for Neuromuscular Diseases - EURO-NMD - Registry Website

  • About this project
  • News
  • Our Partners
  • Project Workplan

Suzie-Ann Bakker

EURO-NMD Registry Hub Impact

13 September 2023

Overview of the EURO-NMD Registry Hub Impact

The EURO-NMD Registry Hub aims to significantly contribute to the landscape of rare neuromuscular diseases in Europe. This article provides an

Category iconProject update

9 February 2021

Independent Advisory Committee (IAC) established

An group of external stakeholders can act as a reliable sounding board providing valuable information regarding a wide array of expertise. At the same

Category iconIAC,  Project update

25 June 2020

Euro-NMD Registry Hub

Patient centered and interoperable registry hub for Rare Neuromuscular Diseases EURO-NMD, ERN for Rare Neuromuscular Diseases, spans 14 European

Category iconProject update

Contact us

registry@ern-euro-nmd.eu

Twitter feed is not available at the moment.

This project is funded by the 3rd EU Health Programme;
Grant Agreement: 947598
EURO-NMD Registry — HP-PJ-2019

Total EU funding: 200,000€
Total Patient Organizations in kind contribution : 274,641.20€
This project is co-funded by
the European Union