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EURO-NMD Registry Website

EURO-NMD Registry Website

European Reference Network for Neuromuscular Diseases - EURO-NMD - Registry Website

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Pilot Patient Registries

ERN EURO-NMD and Duchenne Parent Project begin leveraging their FAIR data

21 February 2021

News from the Pilot Patient Registries: Duchenne Data Platform

The Duchenne Data Platform (DDP) is a patient-led registry created in 2019 and managed by Duchenne Parent Project in the Netherlands. It is a

Category iconFAIR,  Pilot Patient Registries

Contact us

registry@ern-euro-nmd.eu

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This project is funded by the 3rd EU Health Programme;
Grant Agreement: 947598
EURO-NMD Registry — HP-PJ-2019

Total EU funding: 200,000€
Total Patient Organizations in kind contribution : 274,641.20€
Total kind contribution : 368,500.63€
This project is co-funded by
the European Union